The
sun was shining but it was a little chilly outside. Tilmon the oldest was in the living room
playing video games. Gladys Hughes his
grandma was sitting and watching the video game she loved to watch football
whether it be real or not. She would
occasionally comment on how her father would love to watch Tilmon play
football, he didn’t really pay too much attention to it he’d just smile and
continue to play. A couple minutes later
Gladys’ daughter Tilmon’s mom Iantha came downstairs said high and sat next to
her mom on the couch.
“Iantha…..where’s
my father at I just saw him this morning?”
The
roar of the virtual crowd was hushed by the pause menu; Tilmon had been asked
the same question earlier that day and didn’t know how to respond. He turned his attention to his mother the one
person who had all the right answers to his grandma’s questions.
Gladys
Hughes is a small elderly woman that never frowns and always smiles. She was born in Oklahoma and she’ll let you
know every time the sooners when a big football game. Threw her life she has carried many tittles
wife, mom, grandma, church elder, and a lot of the time just Ms. Hughes. When asked how to describe her mother Iantha
Parker said
“My mother is
the perfect role model. She has never
been a "do as I say, not as I do parent." My mother has a kind and loving spirit that
is evident in everything she says and does.
She is a Christian and I think anyone who meets her would know almost
immediately that she is a spiritual woman with strong faith. My mother is
fantabulous!”
A
couple months before that sunny day the family noticed a slight change in
Gladys’ behavior, she seemed lost and confused and it concerned them because
Iantha’s father Alvin Hughes had Alzheimer’s disease and passed while the
children were still young.
What
is Alzheimer’s? “Alzheimer's is a type of dementia that causes problems with
memory, thinking and behavior. Symptoms usually develop slowly and get worse
over time, becoming severe enough to interfere with daily tasks” (http://www.alz.org).
Gladys
was diagnosed with Alzheimer’s after a couple trips to the doctor and it was
now Iantha’s responsibility to make sure her mother got the care she
needed. Even though she continued to
work full time she still did what she could to make sure her mother was
ok. Like making her food for the day, “I
used to make her breakfast and prepare something for lunch so she wouldn’t have
to cook anything.”
During
the early stages it wasn’t very hard to care for Gladys, a lot of the work was
making sure she took all her medicine and be there to comfort her when she got
confused. She would ask questions about
dead relatives or tell you the same thing ten times in five minutes but ask you
“how?” when you reply “I know” and “no I didn’t” when you say “you told me
already.”
But
“Alzheimer's is a terrible disease that attacks the brain and eventually your
body. It has several phases of
progression.” In the later stages the
family began to get worried about Gladys’ safety. Iantha continued making Gladys breakfast and
lunch before leaving to work, but after a while it became evident that Gladys
had stopped eating the second meal.
Gladys
would eat every meal at the dinner table in the same chair, near that chair
there was a big plant. One day Tilmon
decided he would eat in his grandma’s seat because she was finished and had
moved to the living room. To his and
Iantha’s surprise when he looked over at the plant he discovered bits and
pieces of food stuffed in the leaves and the dirt. From then on Iantha would eat dinner with
Gladys to make sure she got enough to eat.
“She started to hide food; I would find food everywhere in her room in
her purse, I don’t know if she just wasn’t hungry any more or if he was trying
to save it.”
As
the disease progressed the family began to worry about Gladys and if it was
safe for her to live in the house. One
of the hardest things to deal with is when Gladys stated to suffer from
“sundowners syndrome.”
“Sundowner’s
Syndrome is the name given to an ailment that causes symptoms of confusion
after “sundown.” These symptoms appear in people who suffer from Alzheimer’s
Disease or other forms of dementia. Not all patients who suffer from dementia
or Alzheimer’s exhibit Sundowner’s symptoms, however. Conversely, some people
exhibit symptoms of dementia all day which grow worse in the late afternoon and
evening, while others may exhibit no symptoms at all until the sun goes down.”
Alva
Hughes Gladys’ oldest daughter had done some research on dementia and
Alzheimer’s and eventually came across this to explain why Gladys became so
restless at night.
Some
nights Gladys would ask Iantha “where’s my keys? I have to go home and feed the
dog.” Sometimes Iantha would have to
stay up and sit in the living room with her mother trying to convince her that
she no longer drove and that she lived at her house where there is no dog.
“I
used to just be very patient and tell her mommy you’re staying here with me
today.”
In
the very late stages Iantha and her family had to “Grandma Proof” their
house. Unplug the microwave so she
wouldn’t stick anything in it that shouldn’t.
Hide all keys to cars so she wouldn’t try and drive. Take off the nobs to the oven because she
would try to cook dinner but get confused half way and put the plastic bowls
straight on the burner. No chemicals in
the bathroom because she would get confused and mistake bleach for perfume and
nail polish for lipstick. Iantha would
never mention Gladys’ house in fear that her mother would become emotional and
demand to go home. The whole family
would have to watch her during holidays to make sure she wouldn’t feed her
medicine to Aunt Alva’s dog, and towards the end of her stay at the Parker
house Iantha and the family would have to check on her in the bathroom to make
sure she was ok.
It
wasn’t that it was too hard to care for Gladys Iantha just felt that it wasn’t
safe for her to stay home alone for a long period of time. Tilmon and Imon were in college meaning she
would have to be home alone for a longer period of time. Gladys now lives in an assisted living home
called the house of Joseph where she seems to like it.
I
asked Iantha how Alzheimer’s has affected her and her mom
“Alzheimer's has taken away many of my
mother's memories and at times the disease makes it difficult for her to
communicate. She seems to understand
what I say to her but she often has difficulty finding the correct words to
respond and carry on a conversation. She
can no longer care for herself as the result of the deterioration of her
executive functioning.”
I then asked her, What would you want people to know
about your mom? She said
“I
would want people to know that even though she has Alzheimer's, she's still the
same wonderful person inside with a heart of gold.”